August’s #BTSM Chat talked about making a map for survivorship mode: a guide to the what’s next and how to’s of life after treatment. As far as Liz and I could tell through our research, there is no standardized survivorship plan for brain tumor patients. The chat for the month of August also announced some new and exciting things for #BTSM – we created a #BTSM Twitter chat account, and a #BTSM Community website is in the works. Keep checking the site for updates!
T1: Do you consider yourself or your friend/family member a survivor at this point?
- How do you define survivor?
T2: How many of you talked with your doctor to determine a survivorship plan after diagnosis/treatment?
- Did you know that there’s such a thing as a SURVIVORSHIP PLAN?
- What should a brain tumor survivorship plan include?
T3: What kind of medical related things do you want survivors to know to follow up with after treatment has ended?
- What are some non-medical related things that you think brain tumor survivors need TO DO after treatment ends?
T4 (bonus round): What ideas can you contribute to a survivorship plan for your specific tumor type/locations?
Two resources for creating generalized survivorship plans that Liz and I came across were The Livestrong Care Plan and Journey Forward. Let us know what you have done to create your survivorship plan, and tune in on September 7th for the next #BTSM chat.