May’s #BTSM chat focused on events and campaigns that are taking place this month, Brain Tumor Awareness Month. We discussed ways to get involved with The National Brain Tumor Society (NBTS) throughout the chat this month instead of using specific topics.
Our chat’s very own @TheLizArmy, @SarahFunes, @ashmt as well as @mAssKicker1 are all in DC this week for NBTS’s Head to the Hill event. The event teaches advocates about key public policy issues, and provides them with an opportunity to speak with congressional leaders. These conversations aim to raise awareness of the needs of the brain tumor community, and the event itself brings together brain tumor advocates from across the country.
Tuesday, May 6th (TODAY) was Congressional Call-in Day from 9am to 5pm. While the advocates mentioned above are in DC, the rest of us could join from home by calling our legislators’ office and talking with their staff about the same issues. The NBTS’ website had a script with prompts to follow. The goal is that legislators would hear from the advocates in DC, and then hear from us. It’s a double whammy.
The NBTS also has a campaign called Sharing Our Knowledge. The campaign wants to know what you needed to know before, and what you can tell people now, post-diagnosis/during survivorship. They are using the hashtag #BTVOICE from May 18 – 31 on Twitter, but you can submit your responses through their website here as well.
Additionally, NBTS is hosting a video chat on May 22nd called Frankly Speaking About Brain Tumors from 2:30-3:20pm EST. The chat wants to help people learn how to make empowered decisions for their treatment, and gain an understanding of current brain tumor research and treatment options. It would also like to help people find out how they can get involved in their communities and take action for brain tumor advocacy all year long. You need to fill out a form with your name and email address in order to receive an invitation to the chat, and you can do so here.
The next #BTSM chat will take place on June 1st. Join us!